Glaucoma Isn’t Just for the Elderly: How My 14-Year-Old Sister Lost Her Sight—and What You Need to Know"

 

She was just fourteen.



My sister, Shakila Yasmeen, had barely stepped into her teenage years when she went blind. I remember the confusion, the appointments, the helplessness on my father's face as he ran from clinic to clinic—hoping, praying, pleading for a miracle. But glaucoma doesn't wait. It doesn't matter how young you are.

And that's why I'm writing this.

Because most people think glaucoma is an old person's disease. It's not.


The Silent Thief That Took My Sister's Sight

Glaucoma doesn't knock before it enters. It creeps in quietly—no pain, no warning signs in the early stages. For my sister, it showed up as occasional blurriness, a little difficulty seeing in low light. Nothing alarming at first. We chalked it up to growing pains or long hours at school.

But by the time we reached the right specialist, it was too late.

The optic nerve—the eye's connection to the brain—had already suffered irreversible damage. Glaucoma had done its work in silence. No drama. Just slow, permanent blindness.

What haunted us later wasn't just the diagnosis—it was the fact that none of us had even heard that children or teenagers could get glaucoma.


So What Is Glaucoma—And Why Should You Care?

In plain terms, glaucoma is a disease that damages the optic nerve, often due to high pressure in the eye. That pressure builds up when fluid in the eye doesn't drain properly. Over time, the nerve deteriorates—and with it, your vision.

But here's what most people get wrong:

  • You can have high eye pressure and not have glaucoma. That's called ocular hypertension .

  • You can have glaucoma and normal eye pressure. That's called normal tension glaucoma .

  • And yes— young people can get it too.

Most commonly, glaucoma affects adults over 40, but juvenile glaucoma is real—and devastating. It often goes undetected until vision is already compromised.

That's what happened to Shakila.


How Eye Pressure Is Measured—and Why It's Not Foolproof

You've probably had the air puff test at some point during an eye exam. That's one way to measure eye pressure. Other methods include iCare tonometers and the Goldmann applanation tonometer (the gold standard in many clinics).

But here's the twist: these tests aren't perfect. Your eye pressure reading can be influenced by anxiety, blinking, or even the thickness of your cornea. Sometimes the pressure seems high when it's not—or vice versa.

That's why doctors look at more than just pressure . They examine:

  • The optic nerve , using imaging tools

  • Peripheral vision , to detect blind spots

  • OCT scans to measure nerve fiber thickness

  • Corneal thickness , via a test called pachymetry

And if the optic nerve shows signs of damage—even if your pressure is “normal”—they start treatment.


Can It Be Treated? Yes. But timing is everything.

The heartbreaking part is this: glaucoma is treatable, but not reversible .

Once vision is lost, you can't get it back. That's why catching it early is everything.

Doctors use:

  • Prescription eye drops , to lower pressure

  • Laser treatments or surgery , in more severe cases

  • Regular monitoring , especially for high-risk individuals

Sometimes, even people with just high pressure and no nerve damage—like ocular hypertension —are treated preventively, especially if they have risk factors like:

  • Family history of glaucoma

  • diabetes

  • Certain ethnic backgrounds (South Asians, Africans)

  • Use of steroids

  • Thin corneas


Why I'm Telling You This

Because if someone had tested Shakila earlier—really tested her—we might have caught it.
If someone had explained that even children can suffer from glaucoma, my father wouldn't have had to spend years chasing a cure that didn't exist.

I still remember him coming home from the last hospital visit, holding back tears as he whispered, "They said there's nothing more to be done."

That shouldn't have been the end.


What You Can Do Today

  • Schedule regular eye exams —even for your children. Especially if you have a family history of eye disease.

  • Ask for pressure checks , and if something feels off—insist on further testing.

  • Educate others . Because silence is what glaucoma feeds on.

  • Watch for signs : difficulty seeing at night, eye pain, halos around lights, or unexplained vision changes.

You might just save someone's sight.

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